When I reply with a ‘no we didn’t’, I get a look. One that says ‘ahh that’s why’. Our early weeks and months were helped so much by our local parent-run group 21&Co. I rang my parents. A newborn baby with Down syndrome often has physical features the attending physician will most likely recognize in the delivery room. I asked over, and over, and over again until the pediatrician on call finished his examination and told me that she did not have Down’s Syndrome. “I would have explained to him that his knowledge and understanding of DS was extremely outdated and completely unjustified. She was scared for us, for him and so fearful of what the future held.”, She and the rest of Ellie’s siblings sat their own children down to explain about their new cousin Henry, showing them pictures of other children with Down’s Syndrome and talking them through some basic facts. My daughter has Down syndrome. This is all new to me, to her mom and dad, and our whole family. This diagnosis uses a … But I don't think I'd do a second Amnio. When I first found out my baby has Down syndrome, I was extremely sad and appreciated people saying “I’m sorry”. I would have explained to him that his knowledge and understanding of DS was extremely outdated and completely unjustified. “I, on the other hand, lay in my hospital bed all night, awake, staring at Henry, with the same sentence going through my head. It took me a while to appreciate being positive! And how actually, even if the future did have difficulties, we'd cope, because we love him! Don’t worry. My baby has Down Syndrome, Now what? I used to think that I accepted people with Down syndrome. I'd say it's a unique and wonderful experience being a parent of a child with Down syndrome for many reasons. He’s amazing’.”, Ellie says she’s unsure where that composure came from at the very beginning. Why I Terminated My Pregnancy After Learning My Baby Had Down Syndrome. "There has been talk of the eradication of Down’s Syndrome, the debilitating condition, how people ‘suffer’ from Down’s Syndrome. I'm from December 2012 birth club, but my baby was born at 8 months old. Down syndrome, to me, is part of who my daughter is. “Henry has brought people into my life that have truly become some of my best friends – people who not only understand some of the difficulties we face and challenges we deal with but who ultimately, whether it’s because of shared experiences or not, have the same outlook on life as us, and for that we feel so blessed.”. I figured it is high time that this question got a good answer. Overwhelmed! So you're 1:43 for Downs. “The whole aspect of learning difficulties and slower development became so insignificant when our little boy was strapped up to every monitor imaginable in ICU.”. These feelings are all normal. Theres a chance I am not really as far as they think & the test could be wrong but Im so scared and upset what am i in for I need support :(. ‘My son has Down’s Syndrome’. Don’t intrude their privacy, as that would be rude, but if you have an opportunity, look at their hand. My daughter is 7 now. The doctors suspected Hirschsprung's disease, a condition where part of the bowel doesn’t work so everything gets blocked and often requires surgery. So far his impact on his siblings has been positive. Related posts: The day a stranger recognized my son’s Down Syndrome Thankful for Down Syndrome (this one has pictures and video of lots of kids) 5 lies about Down Syndrome. “My father and I were talking about your post about 10 things not to say to a parent of a child with Down syndrome, and we were wondering … Posted 11/09/2012. Here are 12 things you may experience if your baby has Down Syndrome. “I’ve imagined him being out with his friends at discos and parties and having a girlfriend. “My mum was as pragmatic as ever. They left and my husband broke down. She said ‘ok darling. The pregnancy of a baby with Down syndrome is exactly the same as a baby who does not have this syndrome, however, more … Nothing done before or during pregnancy can cause Down’s syndrome. ". "The Sun", "Sun", "Sun Online" are registered trademarks or trade names of News Group Newspapers Limited. After all, it was perfectly fine for someone else to have a baby born with a genetic difference – but not my husband and I, not me. He only had a 1 in 40,000 chance of having down's syndrom but then they found that his neck was thicker than normal. She said, “On our way home, we stopped at a sidewalk cafe. Ellie, who was just seven months into motherhood, says she was already feeling defensive about her son’s condition at the time. A nurse took my hand; the doctor said: 'Nathan isn't going to die, but he's a Mongol - he has Down's syndrome.' This is actually a phrase that I used in Google when I learned of our son’s diagnosis. My family on the other hand thinks that people with down syndrome are less worthy of life and are weirdos to be looked upon. I was having a baby with Down Syndrome! Henry having Down’s Syndrome clearly didn’t deter Ellie and Tom from having more children - and they decided not to screen for the condition in those pregnancies. 1:43 is only about a 2 percent chance, if I've done my math correctly. Scared! A blood test looks for what doctors call “markers,” meaning proteins, hormones, or other substances that could be a sign of Down syndrome. He’s adored by his mum and dad, and is a huge source of entertainment and fun for his two younger siblings, Wilfred, 3, and Beatrix, 1. There is no proper cure for this disorder. 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i think my baby has down syndrome
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